Scientists from Children’s Medical Research Institute swapped their labs for a day on the harbour thanks to the generosity of the Cruising Yacht Club of Australia (CYCA) who hosted the inaugural Breakthrough Sprint Regatta.

The event was held recently to raise awareness about the importance of medical research.

For more than 65 years, Children’s Medical Research Institute (CMRI) has been working on treatments and cures for serious illnesses to improve the lives of children.

Scientists working on conditions ranging from cancer to cystic fibrosis often rely on the generosity of the public, through campaigns like Jeans for Genes, to keep labs open.

The Breakthrough Sprint Regatta allowed scientists to connect with members of the sailing community. Speakers included CMRI cancer researcher Professor Tony Cesare, stem cell expert Associate Professor Anai Gonzalez Cordero and dad Adam Sharpe.

Adam’s daughter Alessia became the first child in Australia to be treated with gene therapy for the devastating disease spinal muscular atrophy. Until recently, children with this condition were unlikely to live past their second birthday. Alessia is now a healthy six-year-old.

“Not only has this changed our lives, but it also changed the entire course of the nature of this disease from being a death sentence a few years ago to having a life-saving treatment available on the Pharmaceutical Benefits Scheme,’’ Adam said. “Now you look at Alessia and you have no idea she has this condition.’’

1 in 20 children has an inherited disease or serious birth defect. CMRI researchers are now working on treatments and cures for children with other inherited diseases and cancer.

CMRI’s Director Professor Roger Reddel thanked the Cruising Yacht Club of Australia for making the event happen and raising vital awareness.

“We hope that this day helped people to understand more about our research and the impact it can have, not only on children like Alessia, but on future generations,’’ Prof Reddel said.

“We’re very grateful to the Cruising Yacht Club of Australia for showing such genuine interest in our work and sharing the message of how important investment in medical research is to ensure our scientists can continue their vital work.’’

The event was part of race one in the LGT Crestone Winter Series held on Sydney Harbour.