His parents were told he may not make it to his 1st birthday.
Will you help fund vital research that creates a brighter future for children like Kalarny?
He couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. At 12-weeks-old Kalarny was diagnosed with Spinal Muscular Atrophy.
This fun-loving country boy is alive today thanks to the medical research that created his “magic muscle juice”. But Kalarny’s young life has been seriously impacted by those first 3 months before treatment.
He has a heart condition and may never walk unassisted.
The advances being made with gene therapy could make life brighter for kids with Spinal Muscular Atrophy like Kalarny.
What is being achieved today was unimaginable 25 years ago. It was science fiction as far as most people were concerned! And we’re only at the beginning of the story.
“We never thought we’d see this day.” - Lykera, Kalarny's Mum
Kalarny started preschool this year – a day his parents thought they’d never see. Not shy at all, he just rolled on in! He is cheerful, cheeky and full of mischief.
Kalarny’s parents credit his life to medical research.
“Thanks to medical research and new treatments, our boy can have the quality of life he deserves. Kalarny is so confident and adventurous – and getting stronger after every treatment. He turns the simplest moments into joyful adventures.”
The advances being made with gene therapy could make life brighter for kids with Spinal Muscular Atrophy like Kalarny. Watch Kalarny's Story.
1 in 20 kids face a birth defect or genetic disease, but many could be helped with gene therapy.