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Help our scientists understand and find treatments for rare diseases.
Fund next generation DNA sequencing to help us find the cause of a genetic disease.
Support Gene Therapy the 'Medicine of the Future' and cure previously incurable conditions with a single injection.

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He couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. At 12-weeks-old Kalarny was diagnosed with Spinal Muscular Atrophy.

This fun-loving country boy is alive today thanks to the medical research that created his “magic muscle juice”. But Kalarny’s young life has been seriously impacted by those first 3 months before treatment.

He has a heart condition and may never walk unassisted.

Donate to advance medical research

The advances being made with gene therapy could make life brighter for kids with Spinal Muscular Atrophy like Kalarny.

What is being achieved today was unimaginable 25 years ago. It was science fiction as far as most people were concerned! And we’re only at the beginning of the story.

“We never thought we’d see this day.” - Lykera, Kalarny's Mum

Kalarny started preschool this year – a day his parents thought they’d never see. Not shy at all, he just rolled on in! He is cheerful, cheeky and full of mischief.

Kalarny’s parents credit his life to medical research.

“Thanks to medical research and new treatments, our boy can have the quality of life he deserves. Kalarny is so confident and adventurous – and getting stronger after every treatment. He turns the simplest moments into joyful adventures.”

Share the magic

Kalarny’s parents know he is living proof of “the magic of what medical research can achieve”.

Your tax-deductible donation will help advance science for kids like Kalarny. Will you give today and turn science fiction into science fact?

Please donate today.